About Alex

I never knew the meaning of tragic until my infant son, Alexander, was diagnosed with such a rare and devastating condition. Our family, especially his sisters, Arielle and Alyssa, ask for your prayers and help in fighting Hemophagocytic Lymphohistiocytosis (HLH), a fatal disease that attacks the organs and tissues.

It has been well over a year since Alexander has been diagnosed with HLH.
As of December 2010, we have been anticipating better news since the transplant, which occured months ago.

Discharge to Chicago was indefinitely suspended. Alex had a suspicious seizure that prolonged hospitalization and his GVHD (graft vs host disease) can never seem to stay under control. The complications upon complications are tormenting.

As of today, it is confirmed that my Alex has permanent brain damage. The stroke has affected him and triggered seizures and has left him with visual impairments and left sided physical deficits. Although it is irrevesible, I am hoping other parts of his young brain will compensate. Time will tell, and as you know...prayer is powerful.

I am actually at a loss for words. It just sunk in about Alex's condition.

Up to date information can be found on the NEWS page link.